選取區朗讀
↑Top↑

新聞新知~沒病喜歡跑醫院:孟喬森症候群

公告|..|圖書館

全頁朗讀 |停止朗讀 |

新聞新知

Phony Cancers and Self-Inflicted Acid Attacks: A National Outbreak of Munchausen's?

孟喬森症候群:沒病喜歡跑醫院?

By Maia Szalavitz

Wednesday, September 22, 2010

中文翻譯:   

 
一則讓人驚訝的故事:今年八月,在華盛頓一位28歲的女性來醫院求助,聲稱自己遭到酸液攻擊,這幾乎吸引相當多人注意。但最後她坦承是自己弄的,另一個23歲加拿大女性,假造自己癌症末期的外觀。自己剃掉頭髮、餓肚子,在手指上刺下「不離開醫院」的字樣,假冒慈善名義徵得千餘元募款,最後在今年夏天被送至警察局。
另一則故事,紐約市另一位女子最近謊稱白血病即將死去,哄騙社區鄰居支付她與丈夫度蜜月的開銷,最後被發現是個騙子,而她丈夫也離開了她。
在九月,卡羅拉多州也有類似的案例,一名女子假裝有癌症,從親朋好友募款獲得6萬元美金,後來也被揭穿。
到底怎麼回事?是經濟不景氣導致許多騙子誕生嗎?還是我們國家目前正爆發孟喬森症候群(Munchausen syndrome)?
 
孟喬森症候群是目前最嚴重的人為疾病(factitious disorders),症狀是假冒疾病已獲取利益或注意。我訪問了阿拉巴馬州立大學精神病學專家Dr. Marc Feldman,他是目前世界上對該領域首屈一指專家。Feldman個人架設Munchausens.com網頁,並且對這個領域寫了不少著作和科學文獻,Feldman表示人為疾病比你想像中的還要常見,專家相信,這個疾病導致國家每年有數十億的不必要醫療資源浪費。
 
問:為何一個女子會對自己的臉部潑硫酸?你覺得她有孟喬森症候群嗎?
答:我敢回答說這是詐欺行為的組合,包含假裝、誇大、自我誘導,以獲取金錢或藥物,就像孟喬森一樣。她有雙重動機,一部分是自殺傾向、另一部份是想重新改造她的臉。
我不會去嚴肅探討這個案例,她的行為是因為太少受人注意,所以想藉由激烈的行為獲取,而非真想尋求協助。
 
問:永久性的毀容是個不尋常且極端地策略,以獲取人注意嗎?
答:當你使用腐蝕性物質會變得難以控制,但仍有許多人照樣去做。假裝被襲擊是少見的。然而,大部分普通的孟喬森症候群者,會給皮膚科醫師看奇怪的皮疹,那是他們自己弄出來的。
 
問:如何區別孟喬森症候群和詐騙者?
答:不同點相當的微妙。詐騙者尋求外部物質獲益。最典型的就是佯裝殘疾以獲取金錢或捐款。而孟喬森症候群患者只單純為了心靈上的滿足,通常包含獲得注意和同情。
根據美國精神病學會的意見,以上兩者不可能同時存在於一個人身上。但我研究20年後,我常發現同時具有兩種症狀的人。當獲得了大眾的注意,你會看到接著他也會獲得金錢。
 
問:這個症狀有多常見?
答:在醫院的研究,推估有1%到5%的病人造假和誇大疾病,在精神病醫院稍微高一點,約6%到8%。而針對一般民眾的研究,目前只有一個,是在家庭醫學診所裡,詢問350位看診的病人,請他們填寫暱名問卷,內含問題像是:你曾經刻意延長一個疾病嗎?7%的回答曾經有過,方法像是故意曝露在會過敏的環境下。一個專家說,「自造」的疾病在醫療經濟裡約佔200億美元。
 
問:人為的疾病會越來越常見嗎?假如如此,為什麼?
答:我們目前已經處於「小流行」狀態,就我所知,上個月至少有四例引起了國家注意。網路更擴大了它流行的程度,我已經寫了關於「網路引起孟喬森症後群」相關的文章。我認為許多網路團體和健康支持團體的產生,這樣的行為達到高峰。
我覺得這會越來越多,因為現在很容易做到。假如你無聊,你可以裝出一個新的身分。假如你決定你得到囊胞性纖維症,登入網路社群後,社群的人會立刻接納你,因為他們必須提供這樣的病患協助。所以以保證會被接納,而大家都是如此,假如你被拆穿,你可以立即登出,然後登入新的群組,決定你有厭食症。
 
問:你覺得孟喬森症候群患者對自己的行為是負責任的嗎?
答:有時候人們會問,這些人是病患還是罪犯?答案是兩者都有,你同時可以是病人,也可以是罪犯。舉例來說,戀童症是一種心靈疾病,但也是犯罪。責任最終還是會落在病人身上。但孟喬森症候群理論上是個減緩的因素,他們必須被處罰,但病患假若有孟喬森症候群,可能不需被處罰得太厲害。孟喬森症候群總是被患者形容為上癮的、自我強迫的。他們覺得那是不可抗拒的。因此孟喬森症候群必須被進一步探索,這是個藉口,還是案例?
 
問:是什麼原因導致該症候群?
答:在絕大多數的案例,其症候群根源為人格障礙,尤其是邊緣性人格障礙(一種瘋狂不穩定的情緒、人際關係、自我形象和行為,想想在電影致命吸引力裡,Glenn Close所扮演的角色)。這類的人長時間無法處理他們的需求和壓力。他們以行為表現而非言語,典型的是自我傷害行為。通常,他們在小時後住院時,不預期的發現了醫院裡溫暖和舒服的環境。他們不斷尋求一次又一次醫療照顧的機會。有些例子,他們對專業醫療感到怨恨,並藉由此法獲得平靜。
 
問:你如何治療孟喬森症候群?
答:從臨床上經驗知道,若對於病患下重手去叫他改正只會遭到拒絕,或是逃走,或是威脅。這已經試過好幾萬次,從來沒有成功過。人們反而會建議跳出來站在病患的觀點一起對抗,「我們同意你有嚴重的問題,但那不是身體上的問題,那是心理上的問題,而那正是我們要跟你一起努力的。」這樣會比下重手糾正他們成功率高。
也有一個可以保全面子的策略可用:你可以說「我們已經用了各種治療方法,除了一個治療法之外。不幸的是,假如我們用了最後一個治療法,你還是沒改善,那麼…你只好自己救自己。」(這通常會使他們接受幫助。)
目前還沒有太多治療法被研究出來,我通常建議頻繁的心理治療,一個星期兩次,各45分鐘,有時使用藥物方法治療同時存在的問題。
 
問:有孟喬森症候群的病患傾向於挑選特別的疾病假冒,例如癌症?
答:因為癌症的生還者都會被旁人賦予英雄式稱讚,我們欽佩這些辛苦對抗的人。這是值得稱讚的,對孟喬森症候群的患者而言,這是令人忌妒的病。他們知道不會死,而可以獲得利益。另一個孟喬森症候群最喜歡的病,信不信,是AIDS。
 
問:假如某個人真的身體有問題,而醫生診斷不出來,卻把他標示為孟喬森症候群患者,會怎樣?
答:我的病患裡,最有名的例子就是Wendy Scott。她一直要求我使用真名,她現在已經死了,因為她的身體問題被誤解為孟喬森症候群的證據。
她住遍了歐洲650間醫院,和開過42次腹部刀。她有孟喬森症候群,但卻超過10幾年沒有治療。接著她的肚子開始痛起來,她看過很多醫生,許多人認為那是因為他開過許多次刀所造成的疤痕影響,並且送走她,認為被她騙了。我們在伯明翰大學遇到她,立刻發現她有轉移性腸癌。
這聽起來可能有點難以置信,這是她擊敗孟喬森症候群的方法:Wendy四年期間都沒住院,她住在英國無家可歸收容中心,並養一隻貓。她超喜歡寵物,她了解到假如她再住院,沒人會照顧她的貓,所以她一直沒有住院,當我們遇到她,我們打破慣例把貓帶到醫院給她,貓是她克服孟喬森症候群的解藥。
 
問:你所遇過最極端的案例為何?
答:可能就是Wendy。我猜最極端的案例結果可能都死了。我遇過一個病人用滑石粉在皮膚下製造一個結節,她被發現時已經在急診室浴室死亡,因為滑石粉跑進她的血管,並且流到肺致死。
我也有一個病人,因為她拒絕進精神病院,被警察在臉上噴噴霧劑。她進去精神病院兩年,不斷抓自己的臉導致無數巴痕,聲稱這是受噴霧劑的影響,她控告警察和噴霧劑製造商。因為某些原因,她決定在頭上鑽洞,把尿和唾液噴進頭裡,導致頭膿腫,最後她承認了孟喬森症候群的事實,但並不是腦部膿腫致死,而是她看了21個不同醫生,交錯吃所開的藥而死亡。
 
問:為何絕大多數孟喬森症候群患者都是女性?
答:女性和護士是高危險群。有少數理論支持。一個理論來自女權主義者,認為女性容易被否認,和他們的需要容易被忽略,有些人認為唯一能做的就是假裝生病,獲得需求。
唯一一項研究在20年前出現,輕微人為障礙的比例,女對男為3比1。而孟喬森症候群的爆發比率為女對男比為1以2。但就我的經驗而言,我真的很少很少遇到非女性的孟喬森症候群患者。也許女性比較願意挺身而出面對?我經歷的比例為:2到3個孟喬森症候群男性患者,比上百個女性患者。我不確定老舊的研究真能反映真實。
 
問:你會不會認為,假如我們不這麼看重心靈問題,孟喬森症候群會比較少些。因為似乎這些病患製造身體疾病,因為她們不想接受心靈檢視,就某個程度而言。
答:我們社會比較能接受生理壓力的表現更勝於心理壓力的表現。假如你告訴你老闆,你心理不健康想休幾天假,一定不會被接受。但假若你在電話中咳了幾聲,說你感染了流行感冒,怕傳染給同事,你的假一定會准。
英文原文
 

The stories boggle the mind: in August, a 28-year-old Washington woman claimed to be the victim of a mindless acid attack, and almost won the ultimate prize in attention-seeking — an appearance on Oprah — before admitting she had actually disfigured herself. Another woman, a 23-year-old Canadian, faked terminal cancer. She shaved her head, starved herself, tattooed "won't quit" on her fingers and solicited thousands of dollars in donations for a fake charity, before turning herself over to police this summer.

But, wait, there's more: another woman in New York City recently faked leukemia to wheedle the community into paying for her dream wedding — complete with a honeymoon in Aruba — before she was revealed as a fraud and lost her husband, too.

And September saw the revelation of another case in Colorado, a woman who also pretended to have cancer and raised some $60,000 from friends and neighbors before being unmasked.

What's going on? Is the tanked economy creating incentives for scammers? Or are we in the midst of a national outbreak of Munchausen syndrome?

Munchausen's is the most severe type of a group of illnesses known as factitious disorders, whose sufferers fake illnesses to gain goodies or attention. I spoke with Dr. Marc Feldman, a clinical professor of psychiatry at the University of Alabama and one of the world's leading experts on these disorders. According to Feldman, who runs Munchausens.com and has written several books and numerous scientific papers on the topic, factitious disorders are far more common than you might think. Experts believe they account for billions of dollars in unnecessary health spending.

Q: Why would a woman [Bethany Storro] throw caustic fluid on her own face? Do you think she has Munchausen syndrome?

A: My gut tells me that this is a combination of malingering — which is feigning, exaggerating or self-inducing an ailment to get money or drugs — as well as Munchausen's. There's probably a dual motive. She said it was partly a suicide attempt and partly that she wanted to have her face redone.

I wouldn't take that at face value, so to speak. There are probably deep-seated issues that she's only barely aware of that made her resort to such drastic behavior rather than just seeking help.

Q: Is the risk of permanent disfigurement an unusually extreme ploy to get attention?

A: It's certainly uncontrollable when you use a caustic substance. But a lot of people do it. Feigning an attack *is* unusual. [However], a lot of people show up at dermatologists' offices with strange rashes that they have induced themselves. It's one of the more common of manifestations of Munchausen's.

Q: What's the difference between Munchausen's and malingering to get money or a dream wedding?

A: The difference is in some cases very subtle. In malingering, people [are] after some external gain. Typically, that's disability payments or donations of money or narcotics. In Munchausen syndrome ... the goal is purely emotional satisfaction, often involving getting attention and sympathy.

According to the American Psychiatric Association, you can only have one or the other. But I've been [studying] this for 20 years and I almost always find the two together — at least when a case reaches the public eye or court, then you see the combination routinely.

Q: How common are these disorders exactly?

A: In hospital [studies], it's estimated that between 1% and 5% of patients have to some extent faked or exaggerated their illnesses. In psychiatric hospitals, it's a little higher: 6% to 8%. In the general population, the only good study was one where in a family practice clinic, they asked 350 consecutive patients to fill out anonymous questionnaires in which they were asked questions like "Have you ever done anything to deliberately prolong an illness?" Seven percent said they had, including doing things like exposing themselves to substances they were allergic to. [One expert] has said that manufactured illnesses take $20 billion from the health care economy.

Q: Are factitious disorders becoming more common? If so, why?

A: We seem to have a mini-epidemic right now. There are at least four cases that I know of in the last month that have reached national attention. The Internet has [also] affected it massively; I've written about "Munchausen's by Internet." I think with the advent of so many specific interest groups and health-based support groups, this behavior has really reached new heights. (More on Time.com: Photos: Portrait of Schizophrenia)

I think it is increasing because it's so easy to do now. If you are bored, you can assume a new identity. If you decide you've got cystic fibrosis, [there are groups that] will instantly accept you because their very reason for being is to offer support. So you're guaranteed acceptance and everyone goes along. If you are discovered to be lying, you can sign out and click on a new group and decide you have anorexia.

Q: Do you think people with Munchausen's are responsible for their behavior?

A: Sometimes people will ask, "Are these patients or criminals?" The answer is often both. You can be a patient and a criminal at the same time. For example, pedophilia is certainly a mental disorder, but [molesting children] is certainly a crime. The [responsibility] ultimately lies with the patient. But Munchausen's in theory could be a mitigating factor. They still need to be punished, but maybe not quite so severely if Munchausen syndrome is involved. Munchausen's is often described by sufferers as addictive or compulsive. They feel that it's truly irresistible. There's a need to explore that further: is that an excuse or is it really the case?

Q: What causes it?

A: At the root of most cases are personality disorders, particularly borderline personality disorder [a condition characterized by wildly unstable emotional states, interpersonal relationships, self-image and behavior — think Glenn Close's character in the film Fatal Attraction]. These are people who have long-term maladaptive ways of getting their needs met or handling stress. They use action instead of words, typically self-defeating actions. Often, they have been hospitalized in childhood for legitimate medical problems and unexpectedly found that the hospital was a warm and nurturing place. They go on to seek opportunities to get medical attention over and over. In other cases, they may have grudge against the medical profession and see this as a way of getting even.

Q: How do you treat Munchausen's?

A: We know from clinical experience that heavy-handed confrontation leads only to denial, to the patient eloping from the hospital, or to threats. It's been tried for eons and almost never works. People have instead recommended supportive confrontation where you say, "We agree with you that there's a serious problem here, but it's not a physical problem. It's an emotional problem, which we want to work with you on." That fails less often [than tough confrontation]. (More on Time.com: Invisible Wounds: Mental Health and the Military)

There's also face-saving strategies that may work. You can say this: "We've applied every possible treatment except one. Unfortunately, if we apply the last one and you fail to improve, we will know that you're doing it to yourself." [That sometimes allows them to accept help.]

[Not many treatments have really been studied]. I usually recommend very frequent psychotherapy, 45 minutes twice a week [and sometimes use medications to treat co-existing problems].

Q: It seems patients with Munchausen's tend to pick particular diseases to fake, like cancer.

A: It's [because] in cases of cancer, there is this heroic quality to the cancer survivor, and we view with admiration those who fight hard. It's laudable. For these patients, it's an enviable ailment to have. They know they're not going to die, so they get the benefits without the drawbacks. Another favorite, believe it or not, is AIDS.

Q: What happens if someone has a real disorder that doctors can't diagnose and is mistakenly labeled Munchausen's?

A: The most famous case involved a patient of mine named Wendy Scott. She always asked me to use her real name. She's deceased now because her legitimate medical problem was misunderstood to be further evidence of Munchausen's.

She'd had 650 hospitalizations throughout Europe and Scandinavia and 42 abdominal operations. She had Munchausen's but she'd gotten over it and hadn't done anything to herself in more than 10 years. Then, she started to have belly pain. She went from doctor to doctor. Many said that they could feel a mass but most believed it was scar tissue [from all those operations] and sent her on her way. They figured they were being duped. We got her here in Birmingham at the university and discovered immediately that she had metastatic carcinoma of the bowel.

It may sound unbelievable, but [here's how she beat the Munchausen's]: for four years, Wendy did nothing but get hospitalized. She was in the U.K., living in a homeless shelter and she adopted a kitten. She was an intense pet lover and she realized that if she were hospitalized again, none of other residents would take care of her kitten. So she didn't get hospitalized again. When we had her here [in the hospital], we brought in a kitten in defiance of policy. [Her pet] had been the cure for her.

Q: What's the most extreme case you've ever seen?

A: Probably Wendy's. I guess the most extreme ones are those that result in death. There was a patient who created nodules under her skin by injecting talcum powder. She was found dead in an ER bathroom [because it got into her bloodstream and] traveled to her lungs and killed her.

I also had a patient in a legal case [who had been] pepper-sprayed by the police when she resisted going to a psychiatric hospital. She went on for two years, scabbing and scarring her face [claiming that this was caused by scratching in reaction to the spray]. She sued the police and the pepper-spray manufacturer.

[For some reason] she then decided to drill a hole into her skull. She used a plant mister to spray week-old urine and saliva into her brain matter, creating a brain abscess. She [eventually] admitted the truth. [But it wasn't the brain abscess that killed her]. She died because she was seeing 21 different doctors. She took her medications as prescribed [and the combination] killed her.

Q: Why does it seem like most people with Munchausen's are women?

A: Women and nurses are particularly high-risk groups. There are a few theories. One comes from a feminist perspective and suggests that women are negated and their needs are frequently ignored and so some decide that the only way that they can get their needs met is by appearing to be ill.

[The only study on this] came out almost 20 years ago. It says that the ratio of men to women in terms of factitious disorders — the milder cases — is three women for every one man. When it comes to full-blown Munchausen's, it's 2-to-1, male to female.

But in my experience, which is considerable, I have very, very rarely encountered a Munchausen's patient who wasn't female. Maybe they are more willing to come forward. But I've seen two to three male Munchausen's patients, compared with hundreds of females. I'm not sure that that old research reflects reality.

Q: Do you think we'd see less of this if mental illnesses were less stigmatized? It seems as though these people are creating physical illnesses because they don't want to be seen as mentally ill, to some extent.

A: Our society understands the language of physical distress much more than it understands emotional distress. If you call your boss and ask for a few days off for your emotional [health, you're not likely to get them]. If you cough into the receiver and say you've got the flu and don't want to infect everyone else, you will get days off.

 

資料來源: 
 
Time Magazine Health News 

Phony Cancers and Self-Inflicted Acid Attacks: A National Outbreak of Munchausen's?

.


手機下載本訊息


用LINE分享

訊息: